Read the Latest News

It's Time to Be Part of the Solution

The National Academy of Medicine (NAM) Study on Temporomandibular Disorders (TMD) is well underway. We strongly encourage everyone affected by TMD to write to the NAM committee letting them know what it is like to live with TMD and your experiences with getting care.

New CME on Chronic Overlapping Pain Conditions

The Chronic Pain Research Alliance, an initiative of The TMJ Association, in partnership with the International Pelvic Pain Society, is pleased to announce the release of our newly developed Continuing Medical Education (CME) program on Chronic Overlapping Pain Conditions.

And the Committee heard from the American Association of Oral and Maxillofacial Surgeons

At the end of the NAM meeting, Dr. Gregory Ness, representing the American Association of Oral and Maxillofacial Surgeons (AAMOS) gave the following comments: “AAMOS welcomes the interest and support of the Academies, the NIH, NIDCR, FDA and The

What Allen Told the Committee

Allen Cowley addressed the second open-to-the-public meeting of the National Institute of Medicine's (NAM) Committee on Temporomandibular Disorders (TMD) held on March 28, 2019 in Washington, DC. No stranger to the world of TMD, Dr. Cowley is the hus

Some Thoughts on Depression

It is hardly surprising that the chronic pain and limitations in function that many long-time TMJ patients experience can be accompanied by a state of depression, a sense of exhaustion and hopelessness.

Tina & Mackenzie's TMJ Journey

  • Jul 10, 2019

My daughter was fairly young when she had braces. It was during this time I found out that she was born without a permanent tooth in the front. This explained why she never fully lost her baby tooth because there wasn’t a tooth coming in to push it out.

Throughout the time my daughter had her braces she complained of headaches and not feeling well. I, like many parents, was under the impression that her teeth were moving and the movement was causing some pain. What I wasn’t aware of were the events that would take place after her teeth were completely moved and her alignment was completely off.

Fast forward to April 17th 2012, my daughter’s 16th birthday. Mackenzie had been complaining of not feeling well and, looking back, I never thought of the braces.

Mackenzie was sitting in class and had a wave of vertigo hit her so intensely that she couldn’t move. With her head, jaw and neck hurting, she sat frozen, not knowing what to do. Her teacher noticed immediately. She was sent to the nurse’s office and they called and asked me to pick her up. I was about an hour away, so I called my friend who lived 1 block from the school and asked if she could help me. From that day forward we spent much of our time in ERs and at a health clinic trying to figure out the problem.

First, we waited 6-8 weeks to have an MRI of the brain. There was speculation that she could have a brain tumor. I remember waiting for those results on pins and needles and also remembered the relief I felt when the MRI showed that there were no tumors. However, my daughter’s condition continued throughout the summer, and we still did not know what the problem could be.

By August, school resumed and she was driving herself to class. One morning, as I dropped off my youngest daughter, I received a phone call from Mackenzie who was crying hysterically. She was pulled off to the side of the road, where she sat with her head spinning, in pain with her ears ringing loudly. She said “Mom, I can’t take this. If I have to live like this the rest of my life, I can’t do it”. My daughter is not a drama queen. She generally has a very calm nature. I knew when I heard those words just how badly she was suffering, and how brave she was trying to be. I called her Dad and drove to her parked car where she sat crying. I remember feeling terrible and helpless, because I didn’t know what to do. That day, like so many days, I felt confused.

As she went to many appointments, with still no explanation for her pain, it was finally suggested that her problem may be psychological, and she should see a therapist. Not knowing what else to do, I agreed. I will never forget what she said when she came out of that meeting. She said “Mom, I DO NOT have any mental issues. There is something NOT RIGHT! Why doesn’t someone believe me!” I took one look at her and told myself we would NEVER go back to another therapist appointment again until we found out what was wrong.

By October I had to leave work constantly to pick my daughter up from school, because she was so sick from the constant spinning in her head, pain and the ringing in her ears. I mean honestly! Think about it! If you had constant dizziness, headaches, jaw pain and ringing in your ears, how would you deal with it? You have your head over a toilet throwing up, crying. Get the picture? I even wrote the school because there was some construction work going on nearby that could be causing excessive noise, and I also wondered if they had checked to see if there were any signs of black mold in the building. When I look back, I think I must have looked like a lunatic, but I didn’t know where to turn.

Sometime in October I decided to write on my Facebook wall to see if anyone had heard of a similar condition. I basically put my story out there for some kind of help, reassurance and/or support. Within a couple of hours of my post, a facebook friend by the name of Jonny wrote his story about TMJ and the exact similarities he shared with my daughter. I sat there amazed, as I read about his description of vertigo, ringing in the ears, jaw pain, headaches etc. I now had something to go by and my mission became even stronger.

Another problem in seeking any treatment that could help is that you end up going outside any insurance you have and trying to negotiate payments of some sort. Some days you just think "How can I afford all this?".

By November Mackenzie was so bad that her doctor had already written her an excuse to be out of school. She could not function longer than a few hours without having to lie down. I was fortunate, because my boss and co-workers understood. I don’t know how they even dealt with how much time I had to be away from the office for appointments and taking care of my daughter. Not to mention that I also have a younger daughter, who has to be at school on time, has homework, projects and all the commitments of a good student. She was deserving of my time, too... As a parent you start questioning everything. There were days I would look into the mirror and think “Who are you and where did your humor go?” Nonetheless, we had no choice but to go with our journey.

There are so many things that happened in between the beginning of this journey up until now that it would take a book to cover it all. At this time, I will finish with the following:

My daughter had to quit a job she enjoyed and was unable to drive long distances. I became a barracuda, relentlessly trying to find out everything I could about TMJ. Before starting to inform myself, I thought TMJ was a clicking of the jaw. BOY WAS I WRONG! I contacted to continue to research what is known about this disease-this horrible, HORRIBLE condition that has destroyed lives! The public, as well as health-care professionals, needs to be educated about the non-intrusive treatments that are available, before decisions are made that can make the condition worse and cost thousands of dollars. If I am one of the ones to do this, then so be it. I am ready for the challenge!

Tina - TMJ Parent

Mackenzie – TMJ Patient

©2015 The TMJ Association, Ltd. All rights